성인 발달장애 자녀를 둔 부모의 돌봄부담이 돌봄스트레스에 미치는 영향: 주돌봄자가 지각한 배우자 및 비장애형제자녀의 장애수용 및 책임감의 매개효과

초록

The purpose of this study was to examine the mediating effects of perceived acceptance and responsibility by spouses and non-disabled children in the relationship between caregiver burden and subjective stress among parents of adults with developmental disabilities. The study included 210 parents of adults with developmental disabilities living in Ulsan City. Data were analyzed using SPSS 25.0 and the Process Macro (Model 4). The primary findings were as follows. First, spousal acceptance and responsibility did not mediate the relationship between caregiver burden and subjective caregiver stress. Second, non-disabled children’s acceptance and responsibility mediated the relationship between caregiver burden and subjective caregiver stress. This study elucidates the process by which objective burden—that is, disruptions caused by caring for an adult with developmental disabilities—translates into subjective stress. Specifically, the findings highlight the distinct roles that spouses and non-disabled children play in the primary caregiver’s experience. The results suggest a need to restructure family caregiving dynamics and implement strategies for the efficient distribution of caregiving responsibilities. Such efforts would help sustain care that meets the ongoing needs of adults with developmental disabilities.

키워드